Degenerative muscle wasting condition (type of dystrophy), I have no muscle mass bellow the knee so cant move ankle at all, my foot will just hang there. Its also in my arms and hands, mostly affects my thumbs, cant use them very well and my wrists are very thin but my fingers seem to have a plenty of strength so hanging onto bars is not too hard.
It dose not usually put people in a box but its not unknown if it reaches the diaphram or heart. I decided to go for the trials bike now as I have been told its progressing up my legs and maybe it could put me in a chair so I want to get best use of my legs while I can still use them.
At the moment I use carbon fibre splints that hold my feet in place and stop them just hanging there so I can walk around. The medical physics and engineering people are wanting to make me splints that go right up past my knees but I want to delay that as long as possible as the more you are splinted the harder it is to keep any muscle mass.
For gear and brake work I move my whole leg, its not ideal in some situations but I seem to do fine, ive got to get use to it all again now though having not ridden for a lot of years. Ive worn splints of various types since I was about 15. It was not the muscle wasting that made me give up riding before it was a busted hip joint (doctors missed it when I was young). I had that resurfaced (not replaced its different) in 05 and the cobalt chrome is meant to be pretty tough stuff so the hip is pretty good now it used to be too painfull to even stand.
Mick.